Pediatric palliative care research - Canuck Place Children's Hospice

Source: https://www.canuckplace.org/our-care/research

Archived: 2026-04-23 17:18

Pediatric palliative care research - Canuck Place Children's Hospice
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Research at Canuck Place
Leading the way in pediatric palliative care research
Our commitment
At Canuck Place, we are committed to pediatric palliative care research. Knowledge is powerful and transformational. That’s why Canuck Place is committed creating and sharing knowledge. We collaborate with the BC Children’s Hospital Research Institute, and the research lab team meets regularly to review, process, plan, and share pediatric palliative care research projects.
Research allows us to provide better care for the children and families at Canuck Place.
Why invest in pediatric palliative care research?
Pediatric palliative care differs from adult care, with different conditions, care, and trajectory. That’s why our research focuses on longitudinal studies of children with life-threatening illnesses, epidemiology of children with these conditions, and outcomes of care. It also looks at how pain and symptoms are assessed and managed, and how non-verbal children with neurological impairment experience care.
Canuck Place Research Initiative
The Canuck Place Research Initiative is part of a national, interdisciplinary network of clinicians and researchers. Pediatric palliative care has become an innovative field through the support of Dr. Hal Siden, principal investigator of the Siden Lab; BC Children’s Health Research program, and Canuck Place. We’re grateful to the Canadian Institutes of Health Research and PedPalASCNet for supporting this research since 2004.
The Research Initiative aims to improve the quality of care for children, youth, and their families living with life-threatening conditions, by increasing the capacity of Canuck Place and clinicians to conduct and use pediatric palliative care research.
READ OUR RESEARCH LOGIC MODEL
Canuck Place Research Initiative team
Pediatric palliative care research is evolving, and we have a unique model where the Canuck Place research team sees all the patients in the program.
Canuck Place clinicians conduct and share research with provincial, national, and global audiences. By actively engaging in research, we are able to support the children and families in our care.
LEARN MORE ABOUT OUR RESEARCH TEAM
Research projects
Pediatric palliative care research has a direct impact on children with complex illnesses. Our staff are involved in provincial, national, and international organizations dedicated to advancing hospice care—and share their knowledge around the world.
At Canuck Place, clinical care and research go hand in hand. It’s a balance of head and heart to help families confronted with uncertainty and grief.
CURRENT RESEARCH PROJECTS
Training and education
We believe in sharing best practices to improve care nationally and internationally. Through Canuck Place’s physician training program, each year over 13 physicians get intensive pediatric palliative care training with the Canuck Place clinical team.
By advancing the capacity of the medical community to provide pediatric palliative care, we can support children and families when and where they need it.
LEARN MORE ABOUT TRAINING & EDUCATION
Engage with our research
Knowledge Building Circle
The Canuck Place Knowledge Building Circle provides an open forum to share ideas and pose clinical questions around topics in pediatric palliative care. When we strive to be curious, we can provide better support for the brave, vulnerable hearts at Canuck Place. To learn more, contact the Canuck Place Professional Practice Team or Clinical Educator at 604-731-4847.
Trends in Pediatric Palliative Care Research
Trends in Pediatric Palliative Care Research (TPPCR) is a newsletter distributed by the Canuck Place Research Initiative. The newsletter contains a list of citations pulled from a carefully crafted search strategy featuring the most current and relevant literature in pediatric palliative care research. The newsletter gives a glimpse into the trends of a small, but growing area of research and includes a commentary on a chosen publication by an expert in the field. TPPCR comes out once a month and is read by clinicians, researchers, students and anyone interested in the field of pediatric palliative health care.
learn more & SUBSCRIBE
virtual research library for pediatric palliative care
Canuck Place hosts an online library with thousands of references relevant to pediatric palliative care that are collected from the TRENDS newsletter. The reference library is accessible via the Zotero platform. Access to full text publications are personally or institutionally dependent.
VIEW
Partnerships
We partner and collaborate with likeminded organizations to grow awareness of pediatric palliative care through research.
Among our partners are:
The
Pediatric Palliative Care Research Network (PPCRN)
, a muti-centre team of researchers and clinicians
CHILD-BRIGHT Network
, a research group made up of partners with lived experience, researchers, clinicians, and policymakers
BC Complex Kids,
a grassroots collective of BC families raising children with both medical complexity and disability
Canadian Institutes of Health Research (CIHR)
, Canada’s federal funding agency for health research
BC Children’s Hospital Research Institute (BCCHRI)
Children’s Healthcare Canada
University of British Columbia (UBC)
Michael Smith Health Research BC
, an advocacy group
International Children’s Palliative Care Network (ICPCN)
Research
Explore More Research Projects
Contributions and recognition of patient partners in pediatric health research: a scoping review
Health equity considerations in children with health complexity
Population data for children living with serious illness in BC
Questions? Find an answer here.
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How can you help?
There are so many ways to give. You can support complex care for children with life-threatening illnesses and families in BC and the Yukon. With your help, Canuck Place will support them in living the end of life as fully as the beginning.
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