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Collection: Patient and public involvement
Engaging indigenous patient partners in patient-oriented research in Canada
December 2024
Marie-Claude Tremblay, Associate Professor, Department of Family Medicine and Emergency Medicine, Université Laval
Storytelling for impact: Creating a storytelling program for patient partners in research
November 2024
Leah Getchell, MA, MSW, RSW, Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario.
Teresa Atkinson, Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada.
HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia
October 2024
Professor Uma Palanisamy, Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia
Two sides of the camera: Collaboration, Co-creation and Co-production in public health research
September 2024
Prof Lynn Hendricks, Associate Professor, Stellenbosch University.
Dr Thaakirah Toefy, Medical Doctor, Western Cape Government.
Mr Reshaan Dollie, Visual Anthropologist, The Dollie House.
Mrs Rizqah Dollie, Visual Anthropologist, The Dollie House.
‘Let’s yarn about sleep’: Co-designing a movement for sleep health equity in First nations communities in Australia
August 2024
Associate Professor Yaqoot Fatima, Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland
Wayne Williams, Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland
Bridging the gap: Knowledge user involvement in rapid reviews
October 2023
Chantelle Garritty, Manager, Global Health and Guidelines Division, Public Health Agency of Canada (PHAC). Professor, School of Epidemiology and Public Health, University of Ottawa. Co-convenor of the Cochrane Rapid Reviews Methods Group.
Candyce Hamel, Senior Epidemiologist, Canadian Association of Radiologists. Co-convenor or the Cochrane Rapid Reviews Methods Group
Shared learning: How to apply PPI in multinational and multi-group research
October 2023
Mogens Horder, Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark Alexandra Alves-Rodrigues, Invited Researcher, Dept of Public Health, University of Southern Denmark
Research priority setting with patients and the public
September 2023
Beccy Maeso, Executive Lead, James Lind Alliance (JLA)
Dr Zelalem Mengistu, Associate professor of Obstetrics, Gynaecology and Urogynecology, University of Gondar, Ethiopia
SPFT Youth PPI Café: A framework for the meaningful involvement of young people in mental health research
August 2023
Abigail Thomson, PhD student & PPI consultant, Queen Mary University of London
Dr Sam Robertson, Sussex Partnership Foundation Trust
What is ‘physical rehabilitation’? A model developed with stroke survivors, carers and physiotherapists for a Cochrane Review on stroke rehabilitation.
March 2022
Alex Todhunter-Brown (formerly Pollock), Senior Research Fellow, Nursing, Midwifery and Allied Health Professions (NMAHP) Research Unit, Glasgow Caledonian University.
Gillian Baer, Senior Lecturer in Physiotherapy, School of Health Sciences, Queen Margaret University, Edinburgh.
Richard Morley, Cochrane's Consumer Engagement Officer.
Developing our international PPI evidence base through high quality reporting: The evolution and use of GRIPP2.
November 2021
Sophie Staniszewska, Professor of Patient and Public Involvement and Experiences of Care, Warwick Medical School, England.
Richard Stephens, Patient Advocate.
Public Engagement and Involvement in Health Research: How well are we doing? Views from the global north vs the global south
July 2020
Dr Gary Hickey, Senior Public Involvement Manager, Wessex Institute.
Kati Turner, Survivor researcher, Population Health Research Institute, St George’s University of London.
Nabeel Petersen, Co-founder of the South African-based NPO the Pivot Collective
Working together to beat COVID-19: engaging and involving patients and public (second webinar)
June 2020
Working together to beat COVID-19: engaging and involving patients and public
June 2020
No Choice of Outcomes About us Without us!
February 2020
Paula Williamson, Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young, Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley, COMET Initiative Patient & Public Involvement Co-ordinator
John Turner, Public co-chair of the PoPPIE Working Group
Maureen Smith, Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Experiences from implementation of PPI in healthcare research in Denmark 2009-2019
February 2020
Mogens Hørder, professor, MD, DMSC, Department of Public Health, University of Southern Denmark
Building trust and sharing power for co-creation in Aboriginal health research
January 2020
Simone Sherriff, Project officer, Study of Environment on Aboriginal Resilience and Child Health (SEARCH)
Hilary Miller, Public health researcher, ReachOut Australia.
Public Participation Impact: the other PPI
January 2020
Eddy Nason, Assistant Director, Ontario SPOR SUPPORT Unit
Emily Nicholas Angl, Director of Health Engagement and Communication, Reframe Health Lab
Stakeholder Involvement in Evidence Synthesis
November 2019
Dr Neal R Haddaway, Senior Research Fellow
Co-production in Action
November 2019
Dr Gary Hickey, Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills, Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler, Design Researcher, Lab4Living, Sheffield Hallam University
Patient and public involvement in research: What, why and how?
August 2019
Dr Gary Hickey, Senior Public Involvement Manager at INVOLVE
Kati Turner, Researcher at the Population Health Research Institute at St George’s, University of London
Involving consumers in Cochrane reviews: learning from the ACTIVE project
October 2016
Alex Pollock and Pauline Campbell, Glasgow Caledonian University
Consumers for the terrified: Exploring new ways of involving consumers in the work of Cochrane
April 2016
Richard Morley, Cochrane Consumer Network Co-ordinator
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